Our Team
The Scientific Committee is composed of one Principal Investigator from each partner center. Their primary role is to determine the scientific direction of the consortium by proposing research studies. Secondary roles include advisory functions such as developing consensus statements, recommendations to enhance the registry, information dissemination, and center retention.
The Working Group manage day to day activities under the general direction of the Coordinators. Their roles include data processing, quality control, reporting, and processing of approved data requests.
The Advisory board provides advice and guidance to contribute to informed decision making.
The coordinators lead the operational and scientific aspects of developing and maintaining the consortium and registry.